5 years after my M.S diagnosis

[WinterHold]

Hello everyone.

So, I crossed the milestone of having "Multiple Sclerosis" for 5 years.
I'm adapting a little by little, thank God for that. I recorded a video on youtube to discuss how to manage both the physical and the psychological changes:






More videos will come about my experience, and you can see the "healthy younger me" before the diagnosis too : boy; how I've changed.

I hope you like the video ^+^

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-> in the right side at the end of the video, is me before 5 years when I first got diagnosed

[Mister Agenda]

I hope it progresses especially slowly for you, WinterHold; and that the available treatments improve dramatically and the existing ones become more affordable soon. I know it's rough.

[brewer]

How's your vision holding up?

Had any bad falls?

Beside the anti-depressant (which I assume is the same) what medications are you on?

[Abaddon_ire]

Hello everyone.

So, I crossed the milestone of having "Multiple Sclerosis" for 5 years.
I'm adapting a little by little, thank God for that. I recorded a video on youtube to discuss how to manage both the physical and the psychological changes:






More videos will come about my experience, and you can see the "healthy younger me" before the diagnosis too : boy; how I've changed.

I hope you like the video ^+^

---

-> in the right side at the end of the video, is me before 5 years when I first got diagnosed

I have a certain sympathy for that. A friend of mine just had a heart lung transplant. With COVID that makes life difficult. There is nothing we can do about it. We will all be sitting down to christmas dinner and she will be excluded. It sucks big time.

ETA: I may well exclude myself since my daily toil puts me in direct contact with 50-100 strangers a day. I do not want to be responsible for transferring strange germs.

[WinterHold]

How's your vision holding up?

Had any bad falls?

Beside the anti-depressant (which I assume is the same) what medications are you on?

For depression I'm on Cymbalta and Cipralex, the vision is worsening, left eye is terrible, lost all sharpness in vision. But the glasses help a lot -not prism though -_- -

I'm not falling nowadays because I quit anything daring, even running became impossible.

I'm taking Rebief injection periodically 3 times a week. Don't forget the epilepsy too : but I had it since I was a teen

---

Hello everyone.

So, I crossed the milestone of having "Multiple Sclerosis" for 5 years.
I'm adapting a little by little, thank God for that. I recorded a video on youtube to discuss how to manage both the physical and the psychological changes:






More videos will come about my experience, and you can see the "healthy younger me" before the diagnosis too : boy; how I've changed.

I hope you like the video ^+^

---

-> in the right side at the end of the video, is me before 5 years when I first got diagnosed

I have a certain sympathy for that. A friend of mine just had a heart lung transplant. With COVID that makes life difficult. There is nothing we can do about it. We will all be sitting down to christmas dinner and she will be excluded. It sucks big time.

ETA: I may well exclude myself since my daily toil puts me in direct contact with 50-100 strangers a day. I do not want to be responsible for transferring strange germs.

I feel sorry for her, anything that includes surgeries just takes it all to another level of pain. The idea itself is terrible, I guess you just have to focus your mind elsewhere and force yourself to forget.

But something about us humans -and I say this from experience-: we adapt.
I hope she adapts well, as for you...wear a mask and hope for the best

[brewer]

Don't think I ever knew you had epilepsy.

[WinterHold]

Don't think I ever knew you had epilepsy.

It's under control since diagnosis, so I might've not mentioned it. Taking my Depakine dose daily became like a second nature to me

[Sal]

I hope you manage with MS.

[Prycejosh1987]

Hello everyone.

So, I crossed the milestone of having "Multiple Sclerosis" for 5 years.
I'm adapting a little by little, thank God for that. I recorded a video on youtube to discuss how to manage both the physical and the psychological changes:






More videos will come about my experience, and you can see the "healthy younger me" before the diagnosis too : boy; how I've changed.

I hope you like the video ^+^

---

-> in the right side at the end of the video, is me before 5 years when I first got diagnosed

I get judged for my physical appearance a lot. What ironic is my appreance is the least of my worries in my eyes. What matters more is the things we have in this life.