Posts: 7677
Threads: 635
Joined: January 19, 2013
Reputation:
30
5 years after my M.S diagnosis
October 22, 2020 at 4:09 pm
(This post was last modified: October 22, 2020 at 4:20 pm by WinterHold.)
Hello everyone.
So, I crossed the milestone of having "Multiple Sclerosis" for 5 years.
I'm adapting a little by little, thank God for that. I recorded a video on youtube to discuss how to manage both the physical and the psychological changes:
More videos will come about my experience, and you can see the "healthy younger me" before the diagnosis too : boy; how I've changed.
I hope you like the video ^+^
-> in the right side at the end of the video, is me before 5 years when I first got diagnosed
Posts: 10376
Threads: 15
Joined: September 9, 2011
Reputation:
119
RE: 5 years after my M.S diagnosis
October 23, 2020 at 9:33 am
I hope it progresses especially slowly for you, WinterHold; and that the available treatments improve dramatically and the existing ones become more affordable soon. I know it's rough.
I'm not anti-Christian. I'm anti-stupid.
Posts: 26976
Threads: 519
Joined: June 16, 2015
Reputation:
90
RE: 5 years after my M.S diagnosis
October 23, 2020 at 4:46 pm
How's your vision holding up?
Had any bad falls?
Beside the anti-depressant (which I assume is the same) what medications are you on?
I don't have an anger problem, I have an idiot problem.
Posts: 2872
Threads: 8
Joined: October 4, 2017
Reputation:
22
RE: 5 years after my M.S diagnosis
October 23, 2020 at 5:34 pm
(This post was last modified: October 23, 2020 at 5:38 pm by Abaddon_ire.)
(October 22, 2020 at 4:09 pm)WinterHold Wrote: Hello everyone.
So, I crossed the milestone of having "Multiple Sclerosis" for 5 years.
I'm adapting a little by little, thank God for that. I recorded a video on youtube to discuss how to manage both the physical and the psychological changes:
More videos will come about my experience, and you can see the "healthy younger me" before the diagnosis too : boy; how I've changed.
I hope you like the video ^+^
-> in the right side at the end of the video, is me before 5 years when I first got diagnosed
I have a certain sympathy for that. A friend of mine just had a heart lung transplant. With COVID that makes life difficult. There is nothing we can do about it. We will all be sitting down to christmas dinner and she will be excluded. It sucks big time.
ETA: I may well exclude myself since my daily toil puts me in direct contact with 50-100 strangers a day. I do not want to be responsible for transferring strange germs.
Posts: 7677
Threads: 635
Joined: January 19, 2013
Reputation:
30
RE: 5 years after my M.S diagnosis
October 25, 2020 at 12:33 am
(This post was last modified: October 25, 2020 at 12:42 am by WinterHold.)
(October 23, 2020 at 4:46 pm)brewer Wrote: How's your vision holding up?
Had any bad falls?
Beside the anti-depressant (which I assume is the same) what medications are you on?
For depression I'm on Cymbalta and Cipralex, the vision is worsening, left eye is terrible, lost all sharpness in vision. But the glasses help a lot -not prism though -_- -
I'm not falling nowadays because I quit anything daring, even running became impossible.
I'm taking Rebief injection periodically 3 times a week. Don't forget the epilepsy too : but I had it since I was a teen
(October 23, 2020 at 5:34 pm)Abaddon_ire Wrote: (October 22, 2020 at 4:09 pm)WinterHold Wrote: Hello everyone.
So, I crossed the milestone of having "Multiple Sclerosis" for 5 years.
I'm adapting a little by little, thank God for that. I recorded a video on youtube to discuss how to manage both the physical and the psychological changes:
More videos will come about my experience, and you can see the "healthy younger me" before the diagnosis too : boy; how I've changed.
I hope you like the video ^+^
-> in the right side at the end of the video, is me before 5 years when I first got diagnosed
I have a certain sympathy for that. A friend of mine just had a heart lung transplant. With COVID that makes life difficult. There is nothing we can do about it. We will all be sitting down to christmas dinner and she will be excluded. It sucks big time.
ETA: I may well exclude myself since my daily toil puts me in direct contact with 50-100 strangers a day. I do not want to be responsible for transferring strange germs.
I feel sorry for her, anything that includes surgeries just takes it all to another level of pain. The idea itself is terrible, I guess you just have to focus your mind elsewhere and force yourself to forget.
But something about us humans -and I say this from experience-: we adapt.
I hope she adapts well, as for you...wear a mask and hope for the best
Posts: 26976
Threads: 519
Joined: June 16, 2015
Reputation:
90
RE: 5 years after my M.S diagnosis
October 25, 2020 at 9:41 am
Don't think I ever knew you had epilepsy.
I don't have an anger problem, I have an idiot problem.
Posts: 7677
Threads: 635
Joined: January 19, 2013
Reputation:
30
RE: 5 years after my M.S diagnosis
October 25, 2020 at 3:43 pm
(October 25, 2020 at 9:41 am)brewer Wrote: Don't think I ever knew you had epilepsy.
It's under control since diagnosis, so I might've not mentioned it. Taking my Depakine dose daily became like a second nature to me
Posts: 2692
Threads: 11
Joined: May 13, 2013
Reputation:
17
RE: 5 years after my M.S diagnosis
October 25, 2020 at 6:15 pm
I hope you manage with MS.
"The first principle is that you must not fool yourself — and you are the easiest person to fool." - Richard P. Feynman
Posts: 79
Threads: 0
Joined: November 13, 2019
Reputation:
0
RE: 5 years after my M.S diagnosis
December 21, 2020 at 2:13 pm
(October 22, 2020 at 4:09 pm)WinterHold Wrote: Hello everyone.
So, I crossed the milestone of having "Multiple Sclerosis" for 5 years.
I'm adapting a little by little, thank God for that. I recorded a video on youtube to discuss how to manage both the physical and the psychological changes:
More videos will come about my experience, and you can see the "healthy younger me" before the diagnosis too : boy; how I've changed.
I hope you like the video ^+^
-> in the right side at the end of the video, is me before 5 years when I first got diagnosed
I get judged for my physical appearance a lot. What ironic is my appreance is the least of my worries in my eyes. What matters more is the things we have in this life.
|