[Serious] Total locked in syndrome and assisted dying

[Duty]

I've just signed up for a direct debit donation mandate to Dignity in Dying, who advocate for widespread/ubiquitous "living wills" as well as assisted suicide, which has at least made me feel a little less powerless on these issues. Some stats from the Advance Healthcare Directive (living wills) wiki: https://en.wikipedia.org/wiki/Advance_healthcare_directive

Perhaps unsurprisingly it appears to be largely the religious "pro life" and "don't play God" brigade who are hampering empathetic, humane progress in the euthanasia and living wills areas. Religion strikes again. As this is a largely USA board I'll just pull in these quotes here too:

Aggressive medical intervention leaves nearly two million Americans confined to nursing homes,[77] and over 1.4 million Americans remain so medically frail as to survive only through the use of feeding tubes.[78] Of U.S. deaths, about a third occur in health care facilities.[79] As many as 30,000 persons are kept alive in comatose and permanently vegetative states.[78][80]

On July 28, 2009, Barack Obama became the first United States President to announce publicly that he had a living will, and to encourage others to do the same. He told an AARP town meeting, "So I actually think it's a good idea to have a living will. I'd encourage everybody to get one. I have one; Michelle has one. And we hope we don't have to use it for a long time, but I think it's something that is sensible."[88] The announcement followed controversy surrounding proposed health care legislation that included language that would permit the payment of doctors under Medicare to counsel patients regarding living wills, sometimes referred to as the "infamous" page 425.[89] Shortly afterwards, bioethicist  issued a call to make living wills mandatory

[SlowCalculations]

Yes, I've read about this I'm in support of allowing those with incurable or painful conditions to choose whether or not they wish to stay alive. 
However, for those who can't communicate even with their eyes it's complicated because on even a low chance they want to remain alive they can't vocalize that meaning you'd be going against their will and not be able to ask them directly. But at the same time I'm not disagreeing I just think it's complicated and I don't have a solid answer for those particular people. 
But for those who can communicate maybe with their eyes, or tech devices who want to go should be given that option. I'm young and hopefully won't be dying anytime soon or even end up with something like the above but if I did this option would be on my list. I don't think anyone around me would be supportive of it though, and I'm sure the people around their loved ones keeping them alive like they aren't always in support of that choice either I don't think it's up to them but I do think it would be a hell of a fight for those individuals. I'm not entirely sure how the system works but sometimes people will be labeled incapable of taking care of themselves or making their own choices and in a bad state i can see this working against them it sorta makes me angry. Sometimes i think people are just afraid to let go and it gets to the point where they're not even considering the individual in front of them anymore they're just going on their own selfish desires. Which makes me wonder do they even see them as a person anymore? it kinda reminds me of how people with disability (The ones not needing the above) end up in situations where we are more of possession than a human. Please don't get upset, i cant always phrase things good but i tried.

[Duty]

If anybody reading this is interested in making a living will/advance care directive for themselves and/or helping raise awareness of living wills, perhaps through social media, an apparently excellent, professional, thorough and FREE 26 page printable template/online form can be found on the Compassion in Dying website here: https://compassionindying.org.uk/choose-...ving-will/

[Ferrocyanide]

Yes, I've read about this I'm in support of allowing those with incurable or painful conditions to choose whether or not they wish to stay alive. 
However, for those who can't communicate even with their eyes it's complicated because on even a low chance they want to remain alive they can't vocalize that meaning you'd be going against their will and not be able to ask them directly. But at the same time I'm not disagreeing I just think it's complicated and I don't have a solid answer for those particular people. 
But for those who can communicate maybe with their eyes, or tech devices who want to go should be given that option. I'm young and hopefully won't be dying anytime soon or even end up with something like the above but if I did this option would be on my list. I don't think anyone around me would be supportive of it though, and I'm sure the people around their loved ones keeping them alive like they aren't always in support of that choice either I don't think it's up to them but I do think it would be a hell of a fight for those individuals. I'm not entirely sure how the system works but sometimes people will be labeled incapable of taking care of themselves or making their own choices and in a bad state i can see this working against them it sorta makes me angry. Sometimes i think people are just afraid to let go and it gets to the point where they're not even considering the individual in front of them anymore they're just going on their own selfish desires. Which makes me wonder do they even see them as a person anymore? it kinda reminds me of how people with disability (The ones not needing the above) end up in situations where we are more of possession than a human. Please don't get upset, i cant always phrase things good but i tried.

Why would someone want to be conscious and unable to move for the rest of their lives?
Is it bc they want to see their family members talk about their lives?
Is it bc they have some favorite TV show they want to watch?

It seems rather pointless to live like that. It seems to be like prison.
Also, eventually, they are going to die. It is just a question whether a human should pull the plug or should nature do it?

I'm assuming that such people are at their end of life.
If it is a 5 y old, would you keep this person in bed for the next 100 y?

My aunt had a stroke and was in bed for permanently. She could not talk. They kept her alive for as long as they could and she died 2 y later.

[Fireball]

Yes, I've read about this I'm in support of allowing those with incurable or painful conditions to choose whether or not they wish to stay alive. 
However, for those who can't communicate even with their eyes it's complicated because on even a low chance they want to remain alive they can't vocalize that meaning you'd be going against their will and not be able to ask them directly. But at the same time I'm not disagreeing I just think it's complicated and I don't have a solid answer for those particular people. 
But for those who can communicate maybe with their eyes, or tech devices who want to go should be given that option. I'm young and hopefully won't be dying anytime soon or even end up with something like the above but if I did this option would be on my list. I don't think anyone around me would be supportive of it though, and I'm sure the people around their loved ones keeping them alive like they aren't always in support of that choice either I don't think it's up to them but I do think it would be a hell of a fight for those individuals. I'm not entirely sure how the system works but sometimes people will be labeled incapable of taking care of themselves or making their own choices and in a bad state i can see this working against them it sorta makes me angry. Sometimes i think people are just afraid to let go and it gets to the point where they're not even considering the individual in front of them anymore they're just going on their own selfish desires. Which makes me wonder do they even see them as a person anymore? it kinda reminds me of how people with disability (The ones not needing the above) end up in situations where we are more of possession than a human. Please don't get upset, i cant always phrase things good but i tried.

Why would someone want to be conscious and unable to move for the rest of their lives?
Is it bc they want to see their family members talk about their lives?
Is it bc they have some favorite TV show they want to watch?

It seems rather pointless to live like that. It seems to be like prison.
Also, eventually, they are going to die. It is just a question whether a human should pull the plug or should nature do it?

I'm assuming that such people are at their end of life.
If it is a 5 y old, would you keep this person in bed for the next 100 y?

My aunt had a stroke and was in bed for permanently. She could not talk. They kept her alive for as long as they could and she died 2 y later.

My MiL had a stroke about 2 years ago, and was paralyzed on pretty much her whole right side. Able to eat, but in pain beside the paralysis; she died a few weeks ago. She had no idea what was going on because of the Alzheimer's and the subsequent dementia. If I get close to that kind of condition and recognize it in time, I'll have an "accident" in the "shop" (garage). $200k, with NO successful outcome expected? smh

[arewethereyet]

Why would someone want to be conscious and unable to move for the rest of their lives?
Is it bc they want to see their family members talk about their lives?
Is it bc they have some favorite TV show they want to watch?

It seems rather pointless to live like that. It seems to be like prison.
Also, eventually, they are going to die. It is just a question whether a human should pull the plug or should nature do it?

I'm assuming that such people are at their end of life.
If it is a 5 y old, would you keep this person in bed for the next 100 y?

My aunt had a stroke and was in bed for permanently. She could not talk. They kept her alive for as long as they could and she died 2 y later.

My MiL had a stroke about 2 years ago, and was paralyzed on pretty much her whole right side. Able to eat, but in pain beside the paralysis; she died a few weeks ago. She had no idea what was going on because of the Alzheimer's and the subsequent dementia. If I get close to that kind of condition and recognize it in time, I'll have an "accident" in the "shop" (garage). $200k, with NO successful outcome expected? smh

A very dear family friend took her own life a couple months ago. She was in her 80s and had some health issues and was in the beginning stages of dementia. I'm pretty sure she knew that her only child could not make the decision to let her go, if it came to that. She took matters into her own hands. I respect, and understand, her choice.

[Disagreeable]

I'm absolutely in favour of euthanasia in this case.

(I'm also absolutely in favour in other cases as well).