(April 19, 2011 at 1:55 pm)Cinjin Cain Wrote: I truly hope that it didn't develop even nearly as badly as those on that website and that he has a full recovery.Thanks CC. It's not something you recover from, more something you're born with. Luckily it hasn't developed like it could in my boy so far.
That being the case - do you believe that your god allowed your child to have this affliction?????
It's something in his genes which is mostly dormant, and no one else in my family has symptoms that I'm aware of. There is a lack of specialists, but we have had infrequent checks and as he gets older the chance he will be badly affected lessen. The hard growths can occur all over the body, in the spine causing irregular curvature, and in the eyes causing blindness.
God created this beautiful reality and everyone gets what they're dealt. All kids are different, and all of them are great. I'm grateful my boy is an amazing person in his own right.. loving, generous and kind.
