(April 24, 2018 at 2:06 pm)mh.brewer Wrote:(April 24, 2018 at 2:01 pm)KevinM1 Wrote: I have Arthrogryposis Multiplex Congenita (https://en.wikipedia.org/wiki/Arthrogryposis). I've had 43 surgical procedures, most of them osteotomies (https://en.wikipedia.org/wiki/Osteotomy - they're fucking painful to go through), to give me what function I currently have. I had another 2 surgeries for an unrelated kidney stone issue. I cannot walk (must use an electric wheelchair), and need help with activities of daily living, including but not limited to: bathing, other hygiene, cooking, bathroom use, dressing myself, etc. Due to the way I sit (my hips won't allow me to sit at a straight 90 degrees), I also have pressure sores on my ass, which always give me pain and have become infected before. Not fun.
I'm also a diabetic. My form of it is essentially late onset Type I. There's a family history on my mom's side with it. When someone gets into their 30s, they usually get it, regardless of diet or physical activity. I'm currently controlling it with oral medications and diet.
See bold
Use to see this all the time in the nursing homes. What's your treatment/prophylaxis regimen?
A combination of simply getting off my butt (my wheelchair can tilt back), topical ointments of varying kinds, and protective coverings. Prisma/Promogran when things start breaking down.
When it was really bad, I had to visit the local wound care clinic, but I have a pretty decent system of dealing with them now. Still hurts, though.
