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I need help on info regarding a rare blood disease
February 1, 2017 at 6:59 pm
(This post was last modified: February 1, 2017 at 7:05 pm by yasalam.
Edit Reason: making the post fancier
)
Hello all,
My question falls under genetics and 'haemo' medicine i think  . I know someone, whose daughter, young, got a rare blood condition, a first one in millions.
It's called TTP (Thrombotic Thrombocytopenic Purpura). This is the 'latest model' of the ITP (Idiopathic Thrombocytopenic Purpura)  .
She takes chemotherapy on a daily basis, and is under ICU. ICU is bloody expensive here, more so chemotherapy.
It's the first time I heard of this rare disease called TTP, and has something to do with internal hemorrhages (blood clots in vessels inside the body) due to low blood platelet count (wbc and cbc).
She's under 'paralyzed' state atm, and takes all kindsa meds and treatments......but very expensive. I lost contact with the family, but it's a crazy situation, so, does anyone know more about the disease and what her condition is life ?
Best,
yasalam
Edit: It's been more than a month, so I think financing is rather important than information. But information would be appreciated
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RE: I need help on info regarding a rare blood disease
February 1, 2017 at 7:19 pm
(This post was last modified: February 1, 2017 at 7:20 pm by chimp3.)
I do not have the ability to link right now but if you type in TTP Support Group you will find groups that provide education, fellowship, and other resources.
God thinks it's fun to confuse primates. Larsen's God!
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RE: I need help on info regarding a rare blood disease
February 1, 2017 at 7:21 pm
The poor girl... 
I have no info to offer, but I hope you find some.
"Of course, everyone will claim they respect someone who tries to speak the truth, but in reality, this is a rare quality. Most respect those who speak truths they agree with, and their respect for the speaking only extends as far as their realm of personal agreement. It is less common, almost to the point of becoming a saintly virtue, that someone truly respects and loves the truth seeker, even when their conclusions differ wildly."
-walsh
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RE: I need help on info regarding a rare blood disease
February 1, 2017 at 7:22 pm
(This post was last modified: February 1, 2017 at 7:22 pm by yasalam.)
(February 1, 2017 at 7:19 pm)chimp3 Wrote: I do not have the ability to link right now but if you type in TTP Support Group you will find groups that provide education, fellowship, and other resources.
Dude, a support group ? It's been a month already! Jeez, I have no idea what a support group can do. You sure about this ?
Answeringttp.org ?
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RE: I need help on info regarding a rare blood disease
February 1, 2017 at 7:26 pm
(February 1, 2017 at 7:22 pm)yasalam Wrote: (February 1, 2017 at 7:19 pm)chimp3 Wrote: I do not have the ability to link right now but if you type in TTP Support Group you will find groups that provide education, fellowship, and other resources.
Dude, a support group ? It's been a month already! Jeez, I have no idea what a support group can do. You sure about this ?
Answeringttp.org ?
If you have lost touch with them then perhaps you don't need a support group. But if you tnink they do then pass it on.
God thinks it's fun to confuse primates. Larsen's God!
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RE: I need help on info regarding a rare blood disease
February 1, 2017 at 7:27 pm
(This post was last modified: February 1, 2017 at 7:38 pm by yasalam.)
(February 1, 2017 at 7:21 pm)Catholic_Lady Wrote: The poor girl...
I have no info to offer, but I hope you find some.
Funny, everyone on this forum happens to be mr./mrs. know-it-all, until a real case scenario comes in play. lol jk. Anyone can chip in info ? Or recommend any institution or doctor ?
(February 1, 2017 at 7:26 pm)chimp3 Wrote: (February 1, 2017 at 7:22 pm)yasalam Wrote: Dude, a support group ? It's been a month already! Jeez, I have no idea what a support group can do. You sure about this ?
Answeringttp.org ?
If you have lost touch with them then perhaps you don't need a support group. But if you tnink they do then pass it on.
*think
Sure, will pass it on.
It's actually pretty, fucking crazy .
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RE: I need help on info regarding a rare blood disease
February 1, 2017 at 7:44 pm
Why are you on an atheist forum soliciting medical advice/information?
This does not smell right.
Being told you're delusional does not necessarily mean you're mental.
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RE: I need help on info regarding a rare blood disease
February 1, 2017 at 7:46 pm
(This post was last modified: February 1, 2017 at 7:48 pm by yasalam.)
(February 1, 2017 at 7:44 pm)mh.brewer Wrote: Why are you on an atheist forum soliciting medical advice/information?
This does not smell right.
Errrmmm.......coz atheist are intellect ? From Plato to richard dawkins ?
And doctors are made of intellects ?
I was also in the forum before......Just had negative feedbacks
I'm also an agnostic theist ?
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RE: I need help on info regarding a rare blood disease
February 1, 2017 at 7:50 pm
Are you asking for advice or just using a young womans misfortune as an excuse to stir up shit?
God thinks it's fun to confuse primates. Larsen's God!
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RE: I need help on info regarding a rare blood disease
February 1, 2017 at 7:52 pm
We're not intellects or hipsters or any of that swine, any more than you are. Also, Chimp was giving you good advise, and you kind of snapped at him. Not sure what that's about.
"For me, it is far better to grasp the Universe as it really is than to persist in delusion, however satisfying and reassuring." - Carl Sagan
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