RE: Robvalue's video collection
March 27, 2016 at 12:15 pm
(This post was last modified: March 27, 2016 at 12:19 pm by robvalue.)
Thank you, you are so sweet
I wish you could drop in, I know we'd get on really well!
I appreciate your kind words. Sadly, there is no treatment yet for CFS. Just management strategies so it doesn't get worse, which is mainly pacing yourself. I volunteered on a helpline for a while to help others with the same condition. There isn't even a proper way to diagnose it, it's done by elimination, so it may be hundreds of different similar conditions. I live in hope a breakthrough will occur soon; lots of research is being done. Sometimes, it goes away on its own, but I do have my suspicions about whether it was really CFS in the first place and not simply stress related tiredness.
There are several con treatments out there such as Mickel Therapy and the Lightning Process. They are unscientific, and it sickens me they are legal. They make all kinds of ridiculous claims, and charge extortionate amounts of money for basically nothing. Just some standard CBT / NLP therapy with nobs on. If that "cures" you, you didn't fucking have CFS.
I would love it if more people did videos about themselves! I would enjoy learning more about my wonderful friends
My wife is always ribbing me about the forum. "Do they think you're a real person?" she says!
She is real, of course. You can't prove she isn't.
I feel like I live a kind of double life. On the forum, I'm in my element, I feel like I have valuable input to make, and I can help people. I know some stuff about the topics that come up. Off the forum, I'm a shambles, a doddery liability. I do my best, but living with me is very hard for my wife. I just can't afford to engage my mental faculties all the time, so I'm kind of in "duhhhh" mode a lot. Poor Emma