Ask an ill person

[Jackie]

Is Chron's manageable or is it progressive?

It is very unpredictable. It can get worse, or go dormant. Most of my life it has been managed with medication to a degree, but with me still having to endure a lot of pain. I’ve required two surgeries so far when medication has no longer been able to control the symptoms, and I could have eventually died if I didn’t have the second one, due to blockages.

My first surgery involved removing a 30cm piece of bowel which contained the disease and which had become compromised, but sadly it has a high risk of reoccurring, which it did with me. In extreme cases people have to have their whole bowels removed.

It is pot luck what kind of specialist you get. I’ve had some awful ones, some okay ones, and some amazing ones. Luckily I’m currently seeing the latter.

When I listen to stories like this, and even having witnessed my late mother's health problems, decline and death, I really want to pull my hair out when anyone wants to claim life is "designed".

No sane parent, if they have the power to stop harm to a child, would set up such a imperfect house.

I can only offer you words of comfort. I hope you can get through this with the least amount of pain.

[robvalue]

If the Crohn's and ME were to be cured (or go into remission, whichever is applicable), do you think that would help with the anxiety and depression?

Boru

Absolutely, yes. ME has basically ruined my life, and I’ve had to adjust to being the equivalent of an 85 year old most of the time.

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It is very unpredictable. It can get worse, or go dormant. Most of my life it has been managed with medication to a degree, but with me still having to endure a lot of pain. I’ve required two surgeries so far when medication has no longer been able to control the symptoms, and I could have eventually died if I didn’t have the second one, due to blockages.

My first surgery involved removing a 30cm piece of bowel which contained the disease and which had become compromised, but sadly it has a high risk of reoccurring, which it did with me. In extreme cases people have to have their whole bowels removed.

It is pot luck what kind of specialist you get. I’ve had some awful ones, some okay ones, and some amazing ones. Luckily I’m currently seeing the latter.

When I listen to stories like this, and even having witnessed my late mother's health problems, decline and death, I really want to pull my hair out when anyone wants to claim life is "designed".

No sane parent, if they have the power to stop harm to a child, would set up such a imperfect house.

I can only offer you words of comfort. I hope you can get through this with the least amount of pain.

Thank you.

I’ve recently had my anti-depressants raised to maximum, and that seems to be helping me cope a little better. The motherfuckers have taken away one of my benefits for no good reason and I need to go to tribunal shortly to try and get it back. I may only be able to get half of it back at best since they just decided to remove one of the categories entirely, secretly and again for no good reason I’m aware of. It’s just the government picking on the vulnerable.