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Stem cell therapy with MS
#41
RE: Stem cell therapy with MS
(March 23, 2018 at 6:10 am)AtlasS33 Wrote:
(March 23, 2018 at 5:55 am)Mathilda Wrote: I have been using the OMS regime (Overcoming Multiple Sclerosis). The author, Professor George Jelinek is a doctor who has made a career reviewing the literature. So when he was diagnosed with MS himself he applied his skills to search the scientific literature for every single aspect of MS. He presents the evidence for you to decide for yourself but he justifies everything about the necessary and recommended changes in lifestyle and diet. And when the answer is unknown he will say so. He has since published papers to test whether the hypotheses are correct and it seems they are. I can't recommend the book enough.

https://www.amazon.com/Overcoming-Multip...+sclerosis

Thank you Mathilda.. I only tried the "Swank Diet", you can't call it a "program"; I only ate fish for a long time. Swank was also a doctor, but I didn't follow no programs. I will give OMS a chance. I quit the Swank diet; but I began to feel the aftermath of doing so now: a fast-food meal or a usual "fatty dish/dairy drink" would give me the worst double vision and slurry speech. I need a new program, so Thanks again :Smile !

Really glad to be of help. Jelinek looks at the Swank diet and the OMS diet is based on it, but like everything in science, the understanding gets refined over time. It is also similar to Terry Wahl's findings.

I eat loads of fish myself, especially salmon and trout. Everybody has to find what works for them because MS is essentially a symptom and there may be different causes. For me it turned out that I had a low level intolerance to diary which was exciting my immune system and was the reason for having a constant problem with colds and runny noses. They stopped the moment I gave up all dairy. There are exacerbating factors which make the MS worse because it encourages the immune system and environmental factors that essentially load the gun but don't pull the trigger (e.g. lack of sunlight, Epstein barr virus/Glandular fever/Mono, genetics etc). But for me the single smoking gun does seem to be the dodgy processed fats and oils talked about in the book 'Fats that Heal, Fats that kill' by Udo Erasmus. Jelinek talks about the book with more scientific rigour than Udo. But essentially, the cooking oils that we see used in everything we buy have been processed so much to extend their shelf life that they are completely unnatural substances that build up over time in the body.

Good quality flax seed oil is your friend. Keep it cool in the dark and avoid buying any oil that is stored in a clear bottle because it's either rancid or has been processed many times over using extremely high temperatures. It turns out that you don't need to use cooking oil at all, but it does require some experimentation. There is no healthy way to cook with oil.

It is difficult sticking to the diet but there are some things that you can help. I personally use substitutes. Soya milk instead of diary (and Alpro deserts for example). Or there is hemp milk, cashew nut milk, oat milk etc. So instead of chocolate or sweets / candy I eat dates and fruit smoothies (I'm going to try blending and dehydrating fruit as well). Eating outside of the house is difficult so I try to prepare my food beforehand. But I do occasionally go to a restaurant and eat fish. I get tempted by the smell of fast food as well but I never touch it. Ever. I ask myself if it ever does taste as good as it smells and is it really worth becoming disabled just for a few minutes satisfaction eating a burger? Secondly, it does take time but our diet is largely born out of habit. Your tastes do change if you stick with it.

Third, if I do make a mistake I accept it but use it as a lesson to avoid doing next time. I'll ask myself for example why I was in a position where I ended up buying a packet of crisps covered in saturated fat?

Every aspect gets covered in the OMS book, diet, lifestyle, medication, stress, exercise etc. But the best thing about it is that Jelinek encourages the reader to be the captain of their own ship and to use whatever works for them. He presents the evidence and points you in the right direction. There is also a forum where people discuss it all https://overcomingms.org/forum/ and which provides lots of practical help.
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#42
RE: Stem cell therapy with MS
(March 23, 2018 at 6:42 am)Mathilda Wrote: Really glad to be of help. Jelinek looks at the Swank diet and the OMS diet is based on it, but like everything in science, the understanding gets refined over time. It is also similar to Terry Wahl's findings.

I eat loads of fish myself, especially salmon and trout. Everybody has to find what works for them because MS is essentially a symptom and there may be different causes. For me it turned out that I had a low level intolerance to diary which was exciting my immune system and was the reason for having a constant problem with colds and runny noses. They stopped the moment I gave up all dairy. There are exacerbating factors which make the MS worse because it encourages the immune system and environmental factors that essentially load the gun but don't pull the trigger (e.g. lack of sunlight, Epstein barr virus/Glandular fever/Mono, genetics etc). But for me the single smoking gun does seem to be the dodgy processed fats and oils talked about in the book 'Fats that Heal, Fats that kill' by Udo Erasmus. Jelinek talks about the book with more scientific rigour than Udo. But essentially, the cooking oils that we see used in everything we buy have been processed so much to extend their shelf life that they are completely unnatural substances that build up over time in the body.
What I concluded from the "Swank Diet" period I had, is to avoid saturated fats, incline more towards a "Paleo" kind of food choices, no grains, no dairy. For dairy you're not alone, something about M.S that is related to Lactose intolerance, I have no "special allergy" for milk and dairy, but a cup of Mocha or Late are enough to excite my symptoms for a good period of time. If the sun is cold in your region go for Vitamin-D shower; I would say :Big Grin over here it's quite hot, the temperature is  like an oven, so I take most of my sunlight from V-D supplements. Also I won't argue that what we eat as modern humans is truly garbage: processed food is so damaging. Combine the wrong lifestyle with the genetics; and you got yourself a diagnosis.

Quote:Good quality flax seed oil is your friend. Keep it cool in the dark and avoid buying any oil that is stored in a clear bottle because it's either rancid or has been processed many times over using extremely high temperatures. It turns out that you don't need to use cooking oil at all, but it does require some experimentation. There is no healthy way to cook with oil.

I'll give the flax seed oil a try after I ask my doctor; I never tried it before. Tried evening primrose oil pills though; but I didn't notice anything, still hanging to the Omega-3 instead;though.
Quote:It is difficult sticking to the diet but there are some things that you can help. I personally use substitutes. Soya milk instead of diary (and Alpro deserts for example). Or there is hemp milk, cashew nut milk, oat milk etc. So instead of chocolate or sweets / candy I eat dates and fruit smoothies (I'm going to try blending and dehydrating fruit as well). Eating outside of the house is difficult so I try to prepare my food beforehand. But I do occasionally go to a restaurant and eat fish. I get tempted by the smell of fast food as well but I never touch it. Ever. I ask myself if it ever does taste as good as it smells and is it really worth becoming disabled just for a few minutes satisfaction eating a burger? Secondly, it does take time but our diet is largely born out of habit. Your tastes do change if you stick with it.

That's great; if you keep it up to the dates and fruits only. Few months ago -during the Swank period- I kept it to natural honey and dates. But I stopped when I gained a little weight, I think I didn't know exactly what quantities I needed for sure. It's great that you prepare your meals in advance, I'm too lazy to do that -_- but I gotta do so if I want to stick to any program and get results. It totally doesn't worth it to become disabled for a few chews, I so agree.


Quote:Third, if I do make a mistake I accept it but use it as a lesson to avoid doing next time. I'll ask myself for example why I was in a position where I ended up buying a packet of crisps covered in saturated fat?
It's pure illusion when I think about it. The key is in hating and despising the feeling of the symptoms that come with the wrong food habits; if you ask me. We "M.S"ers don't get to eat like others : ). The aftermath of diet mistakes has a heavy price, even if temporarily, so that should be the motivation for not doing the mistake again. If only I believe in that.

Quote:Every aspect gets covered in the OMS book, diet, lifestyle, medication, stress, exercise etc. But the best thing about it is that Jelinek encourages the reader to be the captain of their own ship and to use whatever works for them. He presents the evidence and points you in the right direction. There is also a forum where people discuss it all https://overcomingms.org/forum/ and which provides lots of practical help.

I will get that book. Recently; I got the worst brain-mists I ever got from since my diagnosis; I swear I can feel it's due to the leaving of the Swank diet. So I need to make a change. You keep up fighting; Mathilda Smile
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#43
RE: Stem cell therapy with MS
I live in Scotland, which along with Canada is an MS hotspot because of the lack of sunshine. It can also be really cold. But I still try to expose as much skin to the few minutes of sun when I can. Apparently there's only so much Vitamin D you can get per day for any part of the body no matter how long it is exposed to the sun so you need to find a way of getting some all over daily exposure if possible, which can be really difficult. I take supplements as well though. But about ten minutes fully exposed in a hot country at noon can get you all the vitamin D you need for that day. I live in a top floor apartment so I open the window to my living room and sunbathe for an hour at weekends when the sun swings around.

I forgot to mention that Flax seed oil has the highest ratio of Omega 3 of any oil (also called linseed oil). I mail order mine and keep it in the freezer until I need to open it then I store it in the fridge. I use it instead of margarine or butter on my bread, or on my potatoes.

I occasionally take vitamin B for the fatigue / brain fog, (also experimenting with occasionally also taking Vitamin K, calcium and magnesium) and that seems to help. But lots of daily exercise does seem to be the best thing that I have personally found so far. My husband often complains that I have too much energy now when I am dancing (badly) around the kitchen. I'm considering giving up wheat and seeing how that goes. When I first moved back to Scotland and before my diagnosis I was permanently exhausted all the time.

You too keep fighting Atlas. It's good to hear how other people are coping because I don't personally know anyone else with MS.
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#44
RE: Stem cell therapy with MS
Actually just found out, it was exactly a year ago today that I was first diagnosed with MS.
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#45
: Stem cell therapy with MS
(March 23, 2018 at 8:30 am)Mathilda Wrote: I live in Scotland, which along with Canada is an MS hotspot because of the lack of sunshine. It can also be really cold. But I still try to expose as much skin to the few minutes of sun when I can. Apparently there's only so much Vitamin D you can get per day for any part of the body no matter how long it is exposed to the sun so you need to find a way of getting some all over daily exposure if possible, which can be really difficult. I take supplements as well though. But about ten minutes fully exposed in a hot country at noon can get you all the vitamin D you need for that day. I live in a top floor apartment so I open the window to my living room and sunbathe for an hour at weekends when the sun swings around.

I forgot to mention that Flax seed oil has the highest ratio of Omega 3 of any oil (also called linseed oil). I mail order mine and keep it in the freezer until I need to open it then I store it in the fridge. I use it instead of margarine or butter on my bread, or on my potatoes.

I occasionally take vitamin B for the fatigue / brain fog,  (also experimenting with occasionally also taking Vitamin K, calcium and magnesium) and that seems to help. But lots of daily exercise does seem to be the best thing that I have personally found so far. My husband often complains that I have too much energy now when I am dancing (badly) around the kitchen. I'm considering giving up wheat and seeing how that goes. When I first moved back to Scotland and before my diagnosis I was permanently exhausted all the time.

You too keep fighting Atlas. It's good to hear how other people are coping because I don't personally know anyone else with MS.

I heard about the lack of sun in northern parts of Canada too; I'm in Saudi Arabia though, I frankly never heard of M.S until I got diagnosed. The temperature is about 28 C now, in the summer it reaches 40 C on average too -40 is the minimum -_- -. But I understand the exposure like it won't matter which organ is getting the sun rays anyways; see this dr :





If I understand him good; the skin will receive the rays and keeps converting the chemicals until the body extracts the proper chemical. The whole process will happen in the kidneys and liver... etc, so the organ getting the sun is just a portal of entry for the vitamin; if you know what I mean..
I agree on the 10 Minutes bit; that's why I think genetics and food played a huge role in my sickness -probably in yours; too-. I never missed the sun in my life. Actually a day with little sun rays was considered "a blessing".

For the Omega-3, I take pills once a day. But why would you double the intake of the Omega by taking Flax seed oil ? I deeply think that they affect the weight, fish oil is enough as supplement.

I won't give you advice about the fatigue because I couldn't beat it until now. A small walk will raise my symptoms sky-high. I'm hearing a lot about the usefulness of the exercise though; so maybe a combination of good diet and exercise are the key to beat the fatigue?
If you can dance badly, and your husband is referring to your energy; then your lifestyle is working :Smile

I will keep on the fight. Hey; I'm still young enough to hopefully pull it off. Day by day they are getting closer to find a cure for this, as it seems.

(March 23, 2018 at 12:04 pm)Mathilda Wrote: Actually just found out, it was exactly a year ago today that I was first diagnosed with MS.

I was diagnosed in 2015. This is my third year.
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#46
RE: Stem cell therapy with MS
On thinking about it, I do remember getting more energy again after I changed my diet. I also live in a much colder country where anything about 10 degrees is considered summer. I couldn't cope with the heat too well when living in Southern Germany even before my diagnosis.

Anyway, just read this by a known journalist at the BBC who has gone through this treatment. I'm not surprised hearing about the relapses if they aren't also changing their lifestyle. They're just catching it all over again.

How I'm feeling after my MS ‘body reboot’
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